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Jun 08, Leslie rated it it was ok. I will be honest here. I don't know what to rate this book. I had quite a few issues with this book, including excessive word repetition and very little to no dialogue throughout the book. The author is very close to her family yet the reader is not allowed into a conversation between family members but rather told by the author what Mom and Dad said. I would have enjoyed a conversation between Nicole and her brother talking about chronic pain or even about if he did in fact feel neglected given I will be honest here.
I would have enjoyed a conversation between Nicole and her brother talking about chronic pain or even about if he did in fact feel neglected given her illness. The few conversations were so short the reader nearly misses them. Another opportunity missed is when she goes to Thanksgiving dinner to her doctor's house!
Not many people get invites like that. The scene is not set and vivid description is not this author's forte. I don't want to be harsh but you feel as though you are not getting the full picture. So many writing opportunities are missed! I wanted to know what life was like before all the symptoms even started so that I and other readers could relate to the author. What was the the difference between how life is now compared to before the hand began to fold up and the pain rocketed?
It didn't need to be a lot of space but specific to what Nicole did as far as hobbies as who she is as a person. We don't know Nicole at all before symptoms occurred so we have a harder time grieving with her. All we know is that she is a high school student. Seeing someone go through pain is tough but having that poignant, detailed backstory would make it more powerful. The overall lack of description really bothered me. What does Nicole look like?
Does she take after Mom, Dad? What did the doctors look like? What did her boyfriend look like? I just feel there were so many missed opportunities between not providing more dialogue and descriptive scene. In fact, a lot of the medical scenes blended together because they didn't have definitive descriptions and resonating images that set them apart.
U.S. Pain Foundation CEO Resigns, Interim CEO Announced - U.S. Pain Foundation
I have to say the title is misleading. She had flare-ups that caused her to use a wheelchair from time to time but it was never a permanent or semi-permanent object in her life thank heavens!
Let me say it this way It's not something where the author had a procedure done and needed a wheelchair to heal for an extended period or had a disability where she needed the wheelchair full-time everyday for a long time. Say years. She needed it when she had really bad flare-ups -- I don't mean to minimize them but a wheelchair is a big deal. Saying you are wheelchair bound is too. I didn't read that. Maybe it was a bigger part of her life and I missed something but from how I read it the title seemed to portray a different picture than what actually happened.
On the brighter side I thought the author's strength and perseverance were remarkable. No matter what she kept going. A lot people that age any age, really might just say, To hell with it, I'm done! But she didn't and that is remarkable. While I am still a bit confused as to how the system she uses for her condition works, I think it could be of great benefit to others as well.
The myriad of options she tries -- from diet to exercise regime to Eastern philosophies -- was impressive. As a chronic pain patient myself, I took notes on the ones I think best suit my situation. That portion was probably the most helpful and rewarding of all. I do think the author covered a lot of ground in a short period of time and that is to commended: the challenging doctor-patient relationship; how chronic pain affects the family unit; how chronic pain affects romantic relationships; tips on getting off medicine not talking Tylenol more like Morphine and dealing with withdrawal; how to deal with setbacks; the importance of friends when you have chronic pain; the role of self-esteem and chronic pain; and overcoming the highs and lows of chronic pain.
She indirectly and directly touched on quite a few important issues while telling her story. It's not an easy task. While I had issues with how the book was structured and what-not, this story can help those living with chronic pain. It provides tools, lessons, and other steps via memoir to help those of us wanting to be pain-free. And who doesn't want that? I warned the doctor who wanted to insert the pain device that I needed periodic MRIs to keep track of my tumors I have Schwannomatosis and he told me not to worry that he could find someone to do the MRIs.
That never happened. Very frustrating.
Nicole Hemmenway, Author of: "No, It Is NOT In My Head"
The time had come to make my decision. In my heart I knew that God was right by my side. He said to me, that if I was his wife and we already had two children, that he would want me to have the surgery. He said that God gave me two healthy children to take care of and it was my responsibility to be there for them.
As he did not know how quickly the tumor was progressing, the cancer could be at its worst stage at time of delivery of my baby. If I waited until my third baby was born to have the surgery, my husband may be taking care of 3 children on his own. God gave me the strength that day, for I decided that this silent killer, which is what ovarian cancer is really called, was not going to beat me.
I decided to have the surgery. While recovering from the devastating experience, my baby's heart beat dropped very low. I cried and prayed. I couldn't lose her, not now, not ever. My faith in God and my many prayers is what got me throughout the next several months. My beautiful angel was born by C-section at full term.
She is now 5 years old, healthy, happy and so very special to me. My dear daughter and I have a bond that I could never explain to anyone. I risked her life to save mine and I must always remember how much I prayed for her. I believe in my heart she was and still is my guardian angel. If I wasn't pregnant with her, I would never have known about having cancer and maybe it would have been too late.
My daughter is a gift from God and each day I thank Him for my beautiful child and for my treasured life. Each day is a gift, a true gift from God. I am 13 years old.
I have a sister who is 16 and my dad. My mother just passed away of ovarian cancer. She survived for two years. They say it is the best cancer care anywhere. Well I think it was because the doctors at the hospital gave her two more years to live. And I am very grateful for that.
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It was very hard leaving school to go to the hospital every so often. All I tried to do in life was to please her but it was pretty hard when she was on antibiotics and all these medicines that made her drowsy. The last few days of her life I did not go to school. I was in the hospital with my mother.
She had her eyes rolled in the back of her head, Breathing heavily, and she looked very scary. It was hard to believe that she was actually my mother. That's not a lot but if that's all I get that's good enough. We learned about her dying two days before she did go. At the age of 21 I had to have a hysterectomy in In they had to go and get both ovaries.
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Well in I started having pain againg so my husband rushed me to emergency room because I could not walk. They did xrays and an ultrasound to find out my right ovary had grown back this can't be we thought the doctor just didn't take it out.